Whether you’re already championing genetic testing or looking for ways to better support your community, here you’ll find resources to support your work and opportunities to share your perspective to add your voice to this movement.
Amplify your impact. Strengthen community.
Genetic Testing Action Day
Raise Awareness With Your Network
Genetic Testing Action Day on July 25th is a great opportunity for patient advocacy organizations to mobilize their communities around genetic testing. Join Start Genetic and other advocates worldwide in raising awareness and driving action. Sign up for the interest list to get started.
Resources for Your Community
Looking for materials to share with the individuals and families you serve? Direct them to our Patients and Families page for more information on navigating the genetic testing process.
If you’re connected with any healthcare providers, please direct them to our Healthcare Professionals page that will help them as they navigate genetic testing with their patients.
Share Your Insights
In order to meaningfully engage with the communities most affected by genetic testing, we need to understand their real experiences. This questionnaire explores the genetic testing landscape across conditions and will cover diagnostic experiences, prevalence data, testing guidelines, and current treatments.
Your responses will help Start Genetic identify gaps and patterns in the genetic testing landscape and help shape our communications about the importance of genetic testing. All responses are confidential and will be used solely to inform our work.
Estimated completion time: 10-15 minutes
Partner With Us
There are many ways to support our movement to ensure more families have access to genetic testing. We’re always seeking passionate patient-focused organizations to collaborate with. Get in touch to explore how we can work together.
Become a Sponsor
Download the sponsorship guide to learn how your organization can support Start Genetic’s work.
Take Action
Let’s go further together. Your community, voice, and insights are essential to this movement. Visit our Take Action page to sign up for updates, explore partnership opportunities, and find out how your organization can help ensure more families have access to the genetic testing they need.
