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Parent holding a smiling baby, representing the importance of early childhood care and genetic testing for timely diagnosis.

Genetic Testing Advocacy Starts With You

Whether you’re a patient, caregiver, health professional, patient advocacy group -- you can play a key role in making genetic testing accessible for all. Below, we’ve included some recommendations to get you started with genetic testing advocacy.

  • Parent caring for an infant, representing early childhood care and the importance of genetic testing for earlier diagnosis.

    For Patient Advocacy Groups

    • Share genetic testing resources with your community

    • Participate in advocacy or action days

    • Advocate for better coverage of genetic testing

    • Connect patients with financial assistance programs

    • Partner with similar groups or organizations

    Learn more
  • Family spending time together outdoors, representing family support and the benefits of earlier diagnosis through genetic testing.

    For Patients and Families

    • Ask if genetic testing is right for you or your loved one

    • Get tested or referred to a genetic counselor

    • Encourage loved ones to seek testing

    • Connect with other families or community members

    • Share your story or insights

    Learn more
  • Pediatric healthcare professional caring for a young child, representing compassionate care and earlier diagnosis through genetic testing.

    For Health Professionals

    • Test early for unexplained symptoms

    • Refer patients to genetic counselors

    • Stay current on genomics

    • Share educational resources

    • Partner with patient advocacy groups

    Learn more

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Interested in supporting Start Genetic? Join our mission to empower individuals to access genetic testing and unlock understanding, community, and a way forward.

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