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Genetic Testing Advocacy Starts With You
Whether you’re a patient, caregiver, health professional, patient advocacy group -- you can play a key role in making genetic testing accessible for all. Below, we’ve included some recommendations to get you started with genetic testing advocacy.
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Patient Advocacy Groups
Share genetic testing resources with your community
Participate in advocacy or action days
Advocate for better coverage of genetic testing
Connect patients with financial assistance programs
Partner with similar groups or organizations
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Patients and Families
Ask if genetic testing is right for you or your loved one
Get tested or referred to a genetic counselor
Encourage loved ones to seek testing
Connect with other families or community members
Share your story or insights
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Health Professionals
Test early for unexplained symptoms
Refer patients to genetic counselors
Stay current on genomics
Share educational resources
Partner with patient advocacy groups