Whether you’re already championing genetic testing or looking for ways to better support your community, here you’ll find resources to support your work and opportunities to share your perspective to add your voice to this movement.
Patient advocacy organizations are uniquely positioned to help amplify awareness of and access to genetic testing on Genetic Testing Action Day and year-round. Our Patient Advocacy Group Toolkit gives you everything you need to raise awareness, including a digital media guide, posting tips, advocacy strategies, and more.
Click the button below to download the toolkit and get started.
Amplify your impact. Strengthen community.
Raise Awareness With Your Network
As a patient advocacy group, you play a vital role in mobilizing your community around genetic testing. Join Start Genetic and other advocates worldwide in raising awareness and driving action on Genetic Testing Action Day and year-round.
Raise Awareness Online: Download the Patient Advocacy Group Toolkit and start raising awareness on your digital platforms.
Empower Your Community: Share our resources and post on your social channels to connect your community with genetic testing knowledge. Motivate your community to talk to their doctor about genetic testing and raise awareness within their network.
Amplify Provider Awareness: Share our resources with healthcare professionals in your network and advocate for genetic testing in standard care protocols.
Join Us for Genetic Testing Action Day: Every year on July 25th, join our global movement to raise awareness and empower people to think genetic first. Sign up for the interest list to get started.
Host or Co-Host a Conversation: Organize webinars, Instagram Lives, or educational events with genetic testing advocates, particularly around key awareness days or months.
Partner With Us: Interested in a deeper collaboration or co-branded messaging? Email us to explore partnership opportunities.
Resources for Your Community
If you have patients who are looking for answers, please direct them to the Patients and Families page for more information on navigating the genetic testing process.
If you’re connected with any healthcare providers, please direct them to our Healthcare Professionals page that will help them as they navigate genetic testing with their patients.
Raise Awareness With Your Network
As a patient advocacy group, you play a vital role in mobilizing your community around genetic testing. Join Start Genetic and other advocates worldwide in raising awareness and driving action on Genetic Testing Action Day and year-round.
Raise Awareness Online: Download the Patient Advocacy Group Toolkit and start raising awareness on your digital platforms.
Empower Your Community: Share our resources and post on your social channels to connect your community with genetic testing knowledge. Motivate your community to talk to their doctor about genetic testing and raise awareness within their network.
Amplify Provider Awareness: Share our resources with healthcare professionals in your network and advocate for genetic testing in standard care protocols.
Join Us for Genetic Testing Action Day: Every year on July 25th, join our global movement to raise awareness and empower people to think genetic first. Sign up for the interest list to get started.
Host or Co-Host a Conversation: Organize webinars, Instagram Lives, or educational events with genetic testing advocates, particularly around key awareness days or months.
Partner With Us: Interested in a deeper collaboration or co-branded messaging? Email us to explore partnership opportunities.
Resources for Your Community
If you have patients who are looking for answers, please direct them to the Patients and Families page for more information on navigating the genetic testing process.
If you’re connected with any healthcare providers, please direct them to our Healthcare Professionals page that will help them as they navigate genetic testing with their patients.
Share Your Insights
We invite leaders from patient advocacy groups to share their insights about the genetic testing experience across all conditions. Your responses will help Start Genetic identify gaps and patterns in the genetic testing landscape and ensure our work is shaped by the communities it serves.
All responses are confidential and will be used solely to inform our work.
Estimated completion time: 10-15 minutes
Partner With Us
There are many ways to support our movement to ensure more families have access to genetic testing. We’re always seeking passionate patient-focused organizations to collaborate with. Get in touch to explore how we can work together.
